Ewing's Sarcoma
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My journey with Ewing's Sarcoma


How do I feel now?

12/30/03:  Liz visited.  Very nice.  She read to me some Harry Potter from the second book.

1/1/04:  I watched a number of Alias episodes (Alias, Season 1).  I was so inspired that I got on the exercise bike for a while.  I'm not sure how long; I will time it next time.  This was the first time since the bad scan results.  Matt and Karen and Lukas came to dinner.

1/2/04:  Mom and Dad are both feeling under the weather.  Auntie and Tom are going to have to take care of all of us, Grandma Connell included. 

1/5/04Click here to see some photos taken during the recent holidays.

1/8/04:  I’ve had quite a bit of fluid in my lungs recently and sometimes it has been very difficult for me to breath.  Friday, Saturday and Sunday were not very good days.  I had difficulty breathing and bringing up mucus. This made me both apprehensive and afraid.  I needed someone to be with me during these times. Dr. Keohan visited Sunday evening and gave me a prescription to reduce the fluid and she suggested I start Nebulizer treatments, this is where I inhale a spray made from a couple of drugs for about 20-minutes.  I’m feeling a bit better, but am very tired and can’t move about easily, so I’ve tried to find a few comfortable positions in my bed, where I spend most of the time.  I’ve found it relaxing to listen to soft music in the background and to do some beading. For a while I wasn’t eating very much at all, but now I am taking in some fluids and things that I like—for example cold peaches and Greek Lemon Soup. I don’t know where I am on this journey with Ewing’s, but I know I am not at the end. [Liddy asked me to make an entry on her journal page for her.  As I composed it, I read it to her so she could edit it.  She nodded her agreement to what you have just read when it was completed. Bruce, Liddy's dad.]

1/14/04: Liddy and Tom have been living with us since shortly after Thanksgiving.  Those of you who read this journal know that she is in hospice care now. Over the past several days, she has become less and less active, sleeping a great deal and only taking in some crushed ice ships and pureed peaches.  She has stopped responding to us, except for some very few words each day.  We believe she is entering the last stage of her journey with this disease. We’re making her as comfortable as we can, talking to her, stroking her, and telling her (among other things) how much she is loved and admired. 




Bruce, Bev and Tom


1/15/04: Liddy took her final steps on her journey with Ewing’s sarcoma today at 11:15 AM.  No more pain.  No more labored breathing.  No more trembling hands and wobbliness.  No more auras.  She is at rest and at peace. A copy of the obituary that will be printed in the local newspaper follows: 


Shriver, Elizabeth:

     Elizabeth Anne Marie Shriver, known to her family and friends as “Liddy”, died on Jan. 15, 2004 after a 22-month battle with Ewing’s sarcoma.

     She was born November 12, 1966 in East Los Angeles, CA to Bruce and Beverly Shriver, who live in Ossining, NY. Liddy is survived by her husband Tom Swartz, her parents, and her three brothers Bruce, Jr., Mark, Matthew and their families.  Liddy resided with Tom in Jersey City, NJ.

     She was a graduate of SUNY/Stony Brook (BS), Brown University (MS) and NYU (PhD).  She worked at Lucent’s Bell Labs in New Jersey after graduating from NYU. Liddy was an avid cyclist and during her bout with cancer she inspired many patients and caregivers with her online journal and her bike tours.

     Visiting will be on Sunday (Jan.  18) from 2-4 PM and from 6-9 PM at the Edward Carter Funeral Home, 41 Grand St, Croton-on-Hudson, NY (914) 737-0900.  A Funeral Mass will be held at 10:30 AM on Monday (Jan. 19) at Holy Name of Mary Church, 110 Grand Street, Croton-on-Hudson, NY.  Later this spring, a graveside ceremony will be held at St. Augustine Cemetery in Ossining, NY and a memorial service will take place at Liberty State Park in New Jersey, where Liddy and Tom frequently biked.

    In lieu of flowers, the family requests that you make a donation to the Liddy Shriver Sarcoma Initiative, a non-profit charitable entity for those dealing with sarcoma.  Your check must be made out to “FJC” and the memo line must read “Liddy Shriver Sarcoma Initiative”.  Please send the check to FJC, 520 Eight Avenue, 20th Floor, New York, NY 10018.




Bruce, Bev and Tom


A not-for-profit charitable organization that is focused on helping those dealing with sarcoma has been formed to honor Liddy.  It is called the Liddy Shriver Sarcoma Initiative.  Click here to learn more about it and its initiatives.


Previous "How do I feel now?" entries

Tom can be reached at  Bev (Liddy's mom) can be reached at and Bruce (Liddy's dad) can be reached at


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Copyright © 2003 The Shriver Family: Last modified: 01/06/04.